Adult Lung Disease - Important Alpha-1 Message

Important Alpha-1 Message

Individuals diagnosed with Alpha-1 Antitrypsin Deficiency (a risk factor for emphysema and other illnesses) can enroll in the research registry maintained by the Alpha-1 Foundation. The willingness of lung disease patients to participate in clinical research is crucial for the advancement of clinical knowledge and the development of effective treatments. If you or a family member has been diagnosed with Alpha-1, sign up today at www.alphaoneregistry.org or contact the Foundation toll-free at (877) 866-2383 to receive the Research Registry Questionnaire. Alpha-1 Antitrypsin Deficiency (Alpha-1) is a genetic disorder that may predispose affected individuals to several illnesses; including lung disease, liver disease and a skin disease, panniculitis.

Browse to Emedicine for an excellent synopsis of Alpha One, covering everything from being diagnosed to transplants.