Managing COPD: Communicating with your health care provider
Successful management of COPD requires an ongoing collaborative effort between the person with lung disease and his or her health care providers. Learning as much as you can about your illness and what seems to make it better or worse will help you communicate with your doctor. People with moderate to severe COPD should be under the care of a pulmonary specialist - or should at least have an initial consultation with a pulmonologist and the ability to access him or her in the event of worsening of the lung condition.

It is always best to treat developing problems aggressively; do not wait until your symptoms are severe. Uncertainty about what to do or a minimizing of the severity of your symptoms can be very dangerous. Discuss with your doctor ahead of time about what symptoms should be reported. Things which probably should be brought to your doctor's attention include:

  • Any acute illness (if you are running a fever)
  • Chest pain on breathing
  • Increased shortness of breath, more than usual increased difficulty in breathing or wheezing.
  • Increased coughing (more frequent, more severe).
  • A change in cough resulting in yellow, green or bloody colored sputum or a change in the amount or consistency of sputum produced over 24 hours.
  • Drowsiness or morning headache not explained by fatigue or medications. Unusual dizziness, irritability or trouble thinking.
  • Abrupt weight gain, 3-5 pounds, overnight. Check your weight at the same time every day. Check for swelling in the ankles, legs or around the eyes.
  • Palpitations of the heart or rapid pulse, especially if it occurs while resting.
  • Any problems with dehydration, diarrhea, marked depression or problems with another disease.
  • If you use oxygen, be sure to call the doctor if the prescribed amount is not helping you to breathe or exercise with greater ease.
  • If you are using all medications as prescribed and you feel they are not effective. Any reaction to a medication such as rash or nausea.
Emergency Preparation
Plan ahead of time what you would do in case of a severe worsening of breathing or other emergency. Consider the following items and discuss with your doctor and family as necessary.
  • Have a plan for while at home and while away. Include what to do and who to call.
  • Prepare family, roommates and friends to handle emergencies.
  • Identify advance signs of possible emergencies.
  • Know which medication to take for quick relief and what to do next if they don't help.
  • Anticipate some unexpected shortness of breath, but try not to panic.
  • Practice relaxation exercises and breathing techniques and use them frequently.
  • Keep a list by the phone with the following information:
    Family or friend name and phone number
    Physician name and phone number
    911 emergency number
    Your address and nearest cross street
    Name and location of closest emergency facility
    Name and location of preferred facility
    List of medications, their dosages and frequencies
After the emergency:
  • Ask your doctor to explain the last emergency and to explain what you should do the next time.
  • Do some detective work to learn more about what might have caused the attack. Episodes may recur with a pattern.
  • What you know about the last episode may help prevent or control the next one. Was it infection, heart trouble, overexertion, panic, or just one of those days?

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The mission of the American Lung Association is to prevent lung disease and promote lung health.